An open letter to the Prime Minister, time for reflection

'The recent media coverage of Charlie Gard has given rise to heightened interest and discussion about children’s palliative care (both here and abroad). The case has created a high level of public consciousness, but sadly this has also led to a lot of misunderstanding or misrepresentation of children’s palliative care by some.' writes Barbara Gelb OBE,  Chief Executive of Together for Short Lives, a leading UK charity that together with its members, speaks out for children and young people who are expected to have short lives. 

In light of recent heightened media interest, Barbara Gelb has written an open letter  to the Prime Minster, Theresa May.  The letter sets out a number of actions that Together For Short Lives is asking the government to take to improve children’s palliative care for the 49,000 children and young people with life-limiting and life-threatening conditions across the UK.   Read the letter here:  

Barbara Gelb's accompanying blog sets out the broader context for the letter: ‘A Time for Reflection’.