Accessing the Service

Pepper nurses
Referral Criteria
The Pepper nurses will accept referrals from diagnosis through to emergency referrals for a child with a life-limiting or life-threatening diagnosis using the critera below:
  1. The child/young person is aged 0-17 years at time of first referral
  2. The young person is aged between 17-19 years with a prognosis that death is expected before their 19th birthday
  3. The child/young person has a life limiting / life threatening condition which may require palliative care as defined by the eligibility criteria set out  in the four Groups below (according to Together For Short Lives)
Group 1
Life-threatening conditions for which curative treatment may fail e.g. cancer, irreversible organ failure
 
Group 2
Conditions where premature death is anticipated but intensive treatment may prolong life e.g. complicated cystic fibrosis, HIV
 
Group 3
Progressive conditions without curative treatment options where treatment is exclusively palliative e.g. Battens disease, mucopolysaccharidosis.
 
Group 4
Conditions causing severe neurological disability leading to susceptibility of health complications and likelihood of premature death e.g. severe cerebral palsy, multiple disabilities following brain or spinal cord injuries
 

Please note that Children and young people under Group 4 will require further assessment.

 
How to Make a Referral
Any professional or family member can contact the Pepper children’s nursing team through RGHC (Rennie Grove Hospice Care) by telephoning 01442 890444, as long as the child’s family has been informed.
 
Pepper nurses will then make contact with the child's GP and other involved professionals to ensure it is an appropriate referral for the service, before making contact with the family and the child to meet them and carry out an assessment of their needs.